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Evo said:Janus, I can't imagine what you're going through. That's got to be a really tough situation to deal with.
I'm doing okay with it. The worst part was right after the diagnosis of the PKD. At the time I was having some discomfort including lower back pain. It became very severe one morning and I went to the Emergency room. The preliminary diagnositic was a kidney stone. They did an IVP, found a blockage, but also noted the enlarged and cystic kidneys. After the finding out I had the PKD and learning that the pain and discomfort I was having was symptomatic of the disease, I thought that I was going to have to live with the pain, and that possibly that it had already progressed to an advanced stage.
Then my urologists sent me for an Ultrasound, and then on the basis of that, a CT scan. That's when they found the tumor. As it turns out, Kidney cancer and PKD share symtoms. It was the tumor and not the PKD that was causing the pain. Since having my right kidney removed, I have been symptom free.
In fact, I may even have the PKD to thank for the early detection of the cancer. From my understanding, in many cases by the time the Kidney cancer becomes symptomatic enough for one to seek attention, the cancer has grown beyond the kidney and spread to other parts of the body. It is just possible that the PKD and tumor together caused me greater symtoms than the tumor alone would, thus prompting my visit to the ER leading to the detection of the tumor.