Could my son have Steven Johnson syndrome?

  • Thread starter Thread starter gjonesy
  • Start date Start date
Click For Summary

Discussion Overview

The discussion centers around concerns regarding a potential diagnosis of Stevens-Johnson syndrome in a participant's son, who has been hospitalized. Participants are seeking information beyond what is typically available online, focusing on personal experiences and insights related to the syndrome, its triggers, and differential diagnoses.

Discussion Character

  • Exploratory
  • Debate/contested
  • Technical explanation

Main Points Raised

  • One participant reports that their son is hospitalized with symptoms that may indicate Stevens-Johnson syndrome, seeking additional information.
  • Another participant inquires about the information provided by doctors and whether a trigger for the syndrome has been identified.
  • The original poster mentions a history of severe atopic dermatitis and recent treatment with antibiotics and steroids, leading to a severe reaction.
  • There is a suggestion that medical professionals are hesitant to label the condition as Stevens-Johnson syndrome due to potential legal implications.
  • Further details are provided about the son's recent medication history, including a sulfa drug and prednisone, and the evolving diagnoses from "staph scald" to uncertainty regarding the condition.
  • One participant expresses a desire for unpublished insights or experiences related to Stevens-Johnson syndrome, indicating a need for more nuanced information.
  • Some participants express limitations in providing speculative insights, emphasizing the need for expert opinions rather than conjecture.

Areas of Agreement / Disagreement

Participants do not reach a consensus on the diagnosis or the best course of action. There are multiple competing views regarding the condition, its triggers, and the appropriateness of the current treatment approach.

Contextual Notes

Participants note the complexity of the situation, including the son's medical history and the uncertainty surrounding the diagnosis. There are references to legal implications affecting medical labeling and the challenges of differential diagnosis.

Who May Find This Useful

This discussion may be of interest to parents dealing with similar medical concerns, healthcare professionals seeking insights into patient experiences, and individuals looking for community support regarding rare medical conditions.

gjonesy
Messages
264
Reaction score
182
My son was hospitalized this evening and they suspect it may be this syndrome that's the culprit, I'd like some information on this subject, beyond what's plubished on the web.

Any help would be greatly appreciated
 
Biology news on Phys.org
gjonesy said:
My son was hospitalized this evening and they suspect it may be this syndrome that's the culprit, I'd like some information on this subject, beyond what's plubished on the web.

Any help would be greatly appreciated
What have the doctors given you so far for information resources? Have they been able to figure out what triggered the syndrome in your son?

http://www.mayoclinic.org/diseases-...hnson-syndrome/basics/definition/con-20029623

I hope his recovery goes well, and they can figure out what set it off for him.
 
Nothing really, but they referred to that diagnosis until more test are done. He has a history of sever atopic dermatitis. His last flare up they gave him an antibiotic and steroids. 2 weeks later he had finished the meds he had this reaction. He's red from head to toe, his skin is sluffing off, his joints are swollen. They are giving him fluids and treating it like a sever burn.
Now they are reluctant to labble it Steven Johnson syndrome, I think because of the legal implications.
 
Thanks for the info, but I want to know what's NOT published. Especially since they are treating him for Steven Johnson but looking for a differential diagnosis.
 
Addendum information... He was given a course of a sulfer drug, (septra bactrim type) and prednisone (steroid) for minor skin infection a little over 2 weeks ago. He has had MRSA in the past. First diagnosis was " staph scald" after first blood test "Steven Johnson" now it's "uhh we aren't sure may be the most sever atopic flare up in history" he's had bad flare ups before and he looks like he's got a really bad sun burn from head to toe, but his eyes are scabing over. Atopic has never involved his eyes.
 
gjonesy said:
Thanks for the info, but I want to know what's NOT published.
I'm not sure how we can help with this type of request. That's all we have access to. We can't have members speculating about what is going on, even if they have seen similar situations.
 
berkeman said:
I'm not sure how we can help with this type of request. That's all we have access to. We can't have members speculating about what is going on, even if they have seen similar situations.
True and I don't either,...I'm hoping there is an expert that reads this forum that could possibly PM me give advice, and or information on this.
 

Similar threads

COVID Covid Long Haulers: Statistics Show Potential for Serious Health Issue
  • · Replies 47 ·
2
Replies
47
Views
10K
COVID Lingering effects of a COVID infection: Post COVID Syndrome
  • · Replies 19 ·
Replies
19
Views
3K
Medical Is a genetic test necessary for Lowe syndrome?
  • · Replies 7 ·
Replies
7
Views
6K
Can we mimic Turreptosis cellular reversal in humans?
  • · Replies 5 ·
Replies
5
Views
3K
Is It a Rock, Fossil, or Meteorite?
  • · Replies 9 ·
Replies
9
Views
2K
Medical What Causes Crohn's Disease and How Can We Understand It?
  • · Replies 11 ·
Replies
11
Views
3K
MHB My Failed University Life: Addictions, Depression, and Uncertain Future
  • · Replies 1 ·
Replies
1
Views
3K
Can sociopathy be inherited or learned?
  • · Replies 29 ·
Replies
29
Views
6K
Why Don't Insulin Needles "Damage" You or Hurt When Poking Yourself?
  • · Replies 37 ·
2
Replies
37
Views
7K
Does anyone here know what happened to Emmanuel David Tannenbaum
  • · Replies 1 ·
Replies
1
Views
4K