Rare Disease in Yorkshire, England: A Case Study

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I've never heard of this rare disease/illness. I just learned about it from a news feed from a case in Yorkshire, England.

https://www.manchestereveningnews.co.uk/news/uk-news/man-30-died-suddenly-after-25915295

https://www.frontiersin.org/articles/10.3389/fimmu.2021.773352/full

It's apparently so rare that it is difficult to diagnose and treat.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8000693/

https://casereports.bmj.com/content/13/4/e235493
 
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That is really interesting and concerning. It is so rare that it is difficult to diagnose and treat, which makes it even more concerning. I hope that more research can be done on this rare disease so that we can find a way to diagnose and treat it in the future.