I am a 45 year old woman and I've been fighting blindness for the last 9 years. I have a genetic disease called Pseudo Xanthoma Elasticum,
www.PXE.org. There is no cure for this disease, yet. This is a race against time with stem cell research. I need new retinas. There is no such thing as a retina transplant.
What does blind look like? I will convey my experience but by no means am I the expert when it comes to this.
There is 'black' blind. This can happen when you're born or it can also happen when a retina full detaches. A retina detaching can definitely make a person see black for the rest of their life.
There is all different kinds of blindness but in the USA, when a person's visual acuity reaches 20/200 you are legally blind. This can not be corrected with prescription glasses. There are so many different diseases out there that can cause blindness that blind people can see things differently.
My left eye is 20/400 (beyond legally blind). I have a 'blank' (not black) spot, thus a blind spot, that covers the central vision. I can see peripherally. What this means is that I can see colors, shapes, movement, shadows. If you were in front of me I could see your hair color and perhaps your color of clothing but I couldn't make out your eyes, your nose, your mouth or even if you were male/female. This of looking at a clock on the wall and not being able to tell the time. Losing central vision is one type of blindness. Other people lose their peripheral vision and can only see centrally. Sometimes, on really bad vision days, I have an entire solar system of debris floating in my eyeball as if there was a blizzard going on.
My right eye is 20/25 corrected, but I'm fighting with everything I have to save my vision. In addition to PXE, my retinas are very fragile and tear and want to detach. I have had countless surgeries. I also have a colon cancer drug ( Avastin, Lucentis, Eyelea, etc) injected into my eye to help keep the offending hemorrhaging blood vessels at bay.
I've kept my disability quiet at work but I now only have 50% of my right eye left that can see. As my doctor said to me, you're working on one spare tire and it's running out of air. If I go blind in my right eye, I will no longer be able to drive a car or read a book. Thank goodness for audio books.
What does blindness look like? The words isolating and loneliness comes to mind.