My Childhood Seizure Story: From Ambulances to Anxiety

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SUMMARY

The discussion centers on a personal account of childhood seizures attributed to a prescribed sleeping pill, phenobarbital, which was deemed too strong for the individual. Following multiple emergency room visits and tests, including EEG and MRI, the diagnosis shifted from medication-induced seizures to epilepsy. After switching to Dilantin, the individual remained seizure-free for 15 years but developed anxiety regarding potential seizures. A recent neurological evaluation suggested tapering off Dilantin, indicating a possible misdiagnosis of epilepsy.

PREREQUISITES
  • Understanding of seizure disorders, particularly epilepsy
  • Knowledge of common medications for seizure management, such as phenobarbital and Dilantin
  • Familiarity with diagnostic tools like EEG and MRI
  • Awareness of the psychological impact of chronic health conditions, including anxiety
NEXT STEPS
  • Research the effects of phenobarbital on children and alternative medications for seizure management
  • Learn about the diagnostic criteria for epilepsy and how it differs from medication-induced seizures
  • Investigate anxiety management techniques for individuals with a history of seizures
  • Explore recent advancements in neurological assessments and treatment protocols for epilepsy
USEFUL FOR

This discussion is beneficial for individuals with a history of seizures, their families, healthcare professionals, and anyone interested in the psychological aspects of living with chronic health conditions.

ameyers6
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when i was 14 and my mom walked in my bedroom and turned the light on to wake me for school she couldn't wake me up and my eyes were rolling in back of my head
she tried walking me around but my body was limp
she called ambulance but i was fine by the time they got there
they took me to the ER and gave me blood work and and EEG all was fine they sent me home
two days later same thing happened this time my dad was home and tried slapping me in the face but i wouldn't wake up
same deal the ambulance came they gave me an MRI which was fine but the EEG showed seizure and the DR said i had a drug in my system like cocaine later they found out it was my sleeping pill that i was prescribed which was phenobarbital they said it was too strong for a child.
my family DR said the sleeping med caused this but the neuro said it was epilepsy

i quit the sleeping pill and started dilantin and for 15 years i have remained seizure free even though my dilantin levels have always been low
i have developed anxiety that i may have another seizure but a recent neuro visit my first in 15 years said that i was probably not epileptic and to tapper off dilantin
what do you guys think

the anxiety and panic make me dizzy and i worry that is a seizure
 
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