Tracking Research as a Layman (Help Appreciated)

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SUMMARY

The discussion centers on accessing research related to ankylosing spondylitis, particularly a groundbreaking report on remission. Participants recommend utilizing open access journals and databases like PubMed Central, which archives publications from NIH-funded scientists. While the findings are promising, the harsh treatment method raises concerns about safety and risks for patients. Engaging with a physician for further understanding of the technical aspects is advised.

PREREQUISITES
  • Understanding of ankylosing spondylitis and its treatments
  • Familiarity with open access journals
  • Knowledge of PubMed Central and its resources
  • Basic comprehension of biomedical literature
NEXT STEPS
  • Research open access journals in rheumatology
  • Explore PubMed Central for autoimmune disease publications
  • Learn about the implications of immunosuppressive therapies
  • Consult with healthcare professionals about interpreting scientific papers
USEFUL FOR

This discussion is beneficial for patients with ankylosing spondylitis, healthcare professionals, and anyone interested in accessing and understanding biomedical research on autoimmune diseases.

Hlafordlaes
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A recent abstract discusses the first report ever of the remission of an autoimmune disease from which I suffer, ankylosing spondylitis. As a layman without access to subscriptions to professional journals, I was wondering if there might be any posters who are aware of the best internet sites with public access that I might use to get more info.

Sorry for the personal request, but this is potentially ground-breaking news and I am, shall we say, very highly motivated.
 
Biology news on Phys.org
The journal you link to is an open access journal, so you should be able to download the paper. Of course, the paper is highly technical and not written to be understood by the general public, so it would probably be best to discuss the paper with your physician.

All scientists funded by the US National Institutes of Health are required to deposit their publications in a freely accessible database called PubMed Central, so that would be a good place to go if you wish to search the biomedical literature.
 
Thanks, Mr. Norse Tree! You're right, the site did let me dl a pdf that was a bit longer. In the end, tho, the method used that resulted in remission was so harsh (basically nuking the immune system), that even if it produces results for AS, it appears the risks are too high, even for decades-long sufferers like myself.

Thanks again, especially for the link.
 

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