- #36
binzing
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Wait wait never mind. I'd read that wrong, sorry.
turbo-1 said:I have been living with this for years, and nobody aside from my wife and a few other people seem to give a crap.
I do not expect the world to change. I feel, however that people like me are the canaries in the coal mine. If you will do some research on multiple chemical sensitivity, you will find that the EPA (many years ago) sampled fragranced products and found that most all of them contained chemicals that are neural stimulants or neural depressants, some of which are carcinogenic and some of which have been banned for such use. Due to antiquate perfumery laws, the companies making such products do not have to disclose the use of these chemicals.Cyrus said:How many people share your condition, 1 in 100,000? Should the entire world change their habbits because of it? Your last sentence is pure speculation as if there is a direct cause/effect.
Thanks, binzing. I have a friend (a young woman working as a research assistant at Harvard) who has a child with this condition, and her life is hell. There is no treatment - only avoidance, and that's nearly impossible these days.binzing said:Well WE care for one...
turbo-1 said:Thanks, binzing. I have a friend (a young woman working as a research assistant at Harvard) who has a child with this condition, and her life is hell. There is no treatment - only avoidance, and that's nearly impossible these days.
In addition to the classic vanilla Smoothie, you can choose from a range of four fabulous fruity flavours each impregnated with it's own subtle fragrance: Banana, Blueberry, Strawberry or Lemon & Lime.
Just what you want in the lab when you are doing mass-spec assays or chromatography! Volatile organic compounds to contaminate your work-space. What an idea.lisab said:Why, why, why?
George Jones said:I have a 50% chance of having oculopharyngeal muscular dystrophy. Symptoms are late-onset, and, if I have it, they should start showing up now, plus or minus a few years. So, far, I haven't noticed any.
I don't know if I really would have invaded your space last week, turbo-1. But once I learned of your condition, I abandoned any such thought immediately.turbo-1 said:I do not expect the world to change.
Holy moly, jimmy. I passed a stone while on a VERY long road trip through the south for a business presentation. It was really painful. I can't imagine passing 9 in a year. Luckily, my project manager was driving so I could stretch out my leg to take pressure off the stone. When we got to the motel and got our rooms, I had him go to the nearest package-store and buy a couple of 6-packs of beer. I drank beer and let the urine build up until I felt I was going to explode, and managed to pass it that way.jimmysnyder said:I don't know if I really would have invaded your space last week, turbo-1. But once I learned of your condition, I abandoned any such thought immediately.
I suffer from kidney stones which I pass on a regular basis, 9 in a year was my record. Also, I lose consciousness often and my body is unable to absorb all the things that I eat.
No. I love the smell of fresh-cut pine, cedar, fir, spruce, etc.Proton Soup said:turbo, do any aromatic plants like pine or cedar make you ill?
turbo-1 said:No. I love the smell of fresh-cut pine, cedar, fir, spruce, etc.
The things that make me sick are volatile organic chemicals that chemical companies use to simulate these smells. The cedar-smelling fabric softeners are among the worst offenders - they really lay me low.
I have no idea. I have never had a problem working in the pulp and paper industry, nor (as a college student) working summers in a mill that made laminated birch veneers. I built a new woodbox out of rough-sawn white pine this year, and I love the smell of the boards.Proton Soup said:well, trees are full of volatile organics, which is why i wonder what the actual trigger is
http://www.sisweb.com/referenc/applnote/app-41.htm
turbo-1 said:I have no idea. I have never had a problem working in the pulp and paper industry, nor (as a college student) working summers in a mill that made laminated birch veneers. I built a new woodbox out of rough-sawn white pine this year, and I love the smell of the boards.
I cannot determine what chemicals I am sensitive to because our laws (based on antiquated French perfume laws from long ago) let manufacturers list "fragrances" on the label with no details. This is pretty stupid, because anybody with a well-equipped lab can analyze a scented product and figure out exactly what is in it. This is how copy-cat perfumes can hit the market so quickly.
Ivan Seeking said:How did they make this determination?
This is reassuring. All those syllables had me worried. I wish you the best.George Jones said:My mother's mother, my mother, my mother's two brothers, and at least two of my mother's sisters had it.
It's not such a terrible thing. Symptoms show up late, and, once they do, quality of life is only very, very gradually affected. Life expectancy is hardly affected.
bsodmike said:I contracted Labrynthitis during the end of my MSc year @ King's College London. Unfortunately, it was around the time I was building my robot and working on my thesis ~ however, with much effort I did most of the theoretical dev. whilst propped up in bed and glued to my laptop.
Due to the severer vertigo, I could not move much and my head felt like it was 'odd' for a good two months. I ended up flying to Geneva to my Aunts place (for a change of scenery) and to do the final LaTeX compile of the thesis...
It all ended very well of course, even demo'ed the robot to my Professor.
Back to Labrynthitis ~ simply aweful, I sincerely wish no one else ever has to experience it!
If you'd like to see my robot, click here and here. Robot project photo gallery over http://www.bsodmike.com/gallery2/v/projects/complete_projects/Omni-directional+Robot_001 .
My brother-in-law said that even when he was lying down with his eyes closed, he would feel like the room was spinning. It really laid him low - he lost a LOT of weight (that he could ill-afford to lose in the first place).jimmysnyder said:I was diagnosed with labrynthitis many years ago. I forget what the symptoms were, but judging by the chatter here, I expect it was a misdiagnosis. I don't remember anything severe.
Proton Soup said:sinus medication? pseudoephedrine is what they give people for priapism, you know. shouldn't last more than a few hours, tho.
JasonRox said:I took some more to go to bed.
Proton Soup said:maybe not, then, it doesn't mix well with sleep.
franznietzsche said:Generalized anxiety disorder. I used to take a sedative for it, but ativan is more than a little habit forming. My mother has it worse, I can get by without medication for the most part. Worst part is the autonomic response to constant stress--muscle tension, headaches and difficulty focusing.
Math Is Hard said:How do you deal with it? Does exercise help?
I think exercise helps my stress and anxiety, but I also like to get as far away from people as I can. I like to go down to the marina and hang out with the sea lions and the pelicans. Or sometimes I just go and sit by the ocean and just sort of get lost in thinking about how huge it is. It kinda switches my brain to a dial tone.franznietzsche said:Well when I had the ativan it was easy. Hands down my favorite drug ever. I really dislike SSRIs though.
Exercise helps. My job usually requires me to walk 5+ miles a day, so when I'm working I'm better off. Haven't been working much the last few weeks though, so I'm actually a mess right now.
Meditative relaxation techniques help with the muscle tension, as does a little alcohol. Caffeine usually helps with the headaches and focusing.
Biggest thing for me is keeping myself active, not letting myself sit around and do nothing (something I've been really bad about this week actually). If I sit and stew it's far worse. If I force myself to be social, to interact, and participate in activities it's much easier to deal with.
Math Is Hard said:I think exercise helps my stress and anxiety, but I also like to get as far away from people as I can.
I like to go down to the marina and hang out with the sea lions and the pelicans. Or sometimes I just go and sit by the ocean and just sort of get lost in thinking about how huge it is. It kinda switches my brain to a dial tone.