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Medical I want to cure a disorder. Help?

  1. Mar 13, 2012 #1
    Can a man cure a disease lacking research?

    I have a neurologic-visual disorder called HPPD since 1 year ago. My vision is a mess. There is no cure nor satisfatory treatment and it's lacking research. I'm 20 years old, am currently coursing engineering. I'm very intelligent and would like to dedicate 24/7 on this cause, but I don't know how to do it, where to start. I know the question is too subjetive, but: what do I do? What can a man do on my sittuation?
     
    Last edited: Mar 13, 2012
  2. jcsd
  3. Mar 13, 2012 #2

    Evo

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    You have a visual disorder from taking hallucinogens?

    http://en.wikipedia.org/wiki/Hallucinogen_persisting_perception_disorder

    Treatment

     
  4. Mar 13, 2012 #3
    No, I was dosed at a party. I don't do drugs and have never done, I haven't even drunk a single ml of alcohol. Benzodiazepines are not a good treatment. They are very incapaciting drugs and have no effects for many people. Living on benzos would be no better than this. This is not the life I want.

    I'm also very thankful for your answer and for trying to help, but I would really like to address the topic's subject.

    Thanks!
     
  5. Mar 13, 2012 #4

    Evo

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    Regardless of you whether you took drugs willingly or not doesn't change things. If that's what caused your problems, then that is what you have to deal with. I am sorry if you did not bring this upon yourself.

    I have taken benzodiazepines for years for problems without any trouble. Have you tried taking them? They are not incapacitating, if they can help you, you should take them, IMO.

    As for wanting to help find a *cure* if there even is one, go to medical school and then into research. If that's not an option, then try to raise awareness of the issue. But this is very, very rare, and usually self drug inflicted, probably not easy to gain sympathy.
     
    Last edited: Mar 13, 2012
  6. Mar 13, 2012 #5
    So I'm pretty much alone. But the lack of reseach gives me hope, as we don't know anything about it yet. But exactly what do I need to do research on it? Can I do it with an engineering degree, or I need a medicine degree? How this works?
     
  7. Mar 13, 2012 #6

    Evo

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    You would have to go into quite specialized medical research.
     
  8. Mar 13, 2012 #7
    A degree in neurobiology or neurochemistry might be the correct route to take if your interested in perusing researching it specifically. Especially considering its related to the brain.
     
  9. Mar 14, 2012 #8
    Someone said I can do research in any area having a Ph.D. on a hard science, so I don't have to quit electronics engineering to start all over on medicine. Is this correct?

    Changing to medicine now would delay my degree in at least 2 years, counting on the fact I'm admitted, what is complicated because it has the highest competition (100 candidates/vacancy) and my country is just unifying the entrance exham so it is still a mess.
     
  10. Mar 14, 2012 #9

    Pengwuino

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    Absolutely not. You need to be educated in the field you are researching. An electrical engineer will not know anything about anything medical beyond what 2 classes at a Freshman level would teach you.
     
  11. Mar 14, 2012 #10
    So quiting electronics is my only option if I really want this?
     
  12. Mar 14, 2012 #11

    Pengwuino

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    Yes, which probably means it's not a good idea to do.
     
  13. Mar 14, 2012 #12

    Borek

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    While this is not exactly correct, there is a grain of truth. Nobody is doing serious research on their own, in most cases there are teams doing the work. And team requires people with different types of knowledge, so if you will specialize in - say - medical imaging - you can become a member of such team.
     
  14. Mar 14, 2012 #13

    Ryan_m_b

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    I see Borek beat me to it; you can continue into medical research with what you have but it will require some specialisation/training. My advice would be to do some research around what biomedical research courses your degree can get you onto, is there any possibility of doing a masters in medical imaging or medical device engineering?

    Problem is those things may not be particularly relevant to current HPPD research. To get a better picture of your options it would be a good idea to look into the current HPPD research and identify people in the field then send them emails. A bit of googling brings up scholary articles on HPPD from Harvard Medical School, I would suggest doing more research along those lines yourself and finding someone to ask "I want to get in on this, here are my current skills, what can I do?"

    Lastly I would suggest you think carefully about the possible psychological and emotional effects that persuing research in this field may have on you. Many diseases have had decades of research by tens of thousands of people costing many millions of dollars only and a viable treatment still isn't on the horizon.
     
  15. Mar 14, 2012 #14
    So you've been to a doctor, diagnosed with this and been prescribed what?
    When did you last see the doctor?
     
  16. Mar 14, 2012 #15

    Evo

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    Raising awareness might be the most useful and practical path to follow. It could help getting more researchers interested, make it easier to get grant money and donations for the research, and it could happen more quickly then if you try to get involved in research yourself. You could do both, it doesn't have to be one or the other.

    Perhaps you can get more answers here http://hppdonline.com/
     
  17. Mar 14, 2012 #16
    Is HPPD a type of disorder that could possibly be helped with hypnotherapy? Maybe MrDocat doesn't need to change his/her degree, but can work with your own doctor to find something to help with the visual symptoms.

    If you want to cure yourself, work with your doctor. If finding a cure for this disorder fascinates you, then absolutely change degrees to neurochemistry.
     
  18. Mar 14, 2012 #17
    Thanks for all answers. I have to study now, tomorrow I answer properly. But it seems like the best I can do is continue on engineering while at the same time studying hard to medicine, so the best case I lose an engineering year, the worse I don't.
     
  19. Mar 15, 2012 #18
    It's been done so, conceivably, it could be done again:

    http://en.wikipedia.org/wiki/Lorenzo's_Oil

    The Odones were not medical researchers, but they were highly intelligent and extremely motivated people.
     
  20. Mar 15, 2012 #19

    Ryan_m_b

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    Interesting story, to be fair they did work with other scientists such as Hugo Moser and Bill Rizzo but according to wikipedia at least it was Mr Odone's idea after hearing about Rizzo's research in a similar field to use the oil they eventually named Lorenzo's Oil. Also to be clear Lorenzo's oil seems to delay the onset and severeity of symptoms but does not actually stop the disease progressing and is not a cure. Commendable work and committment though either way.
     
  21. Mar 15, 2012 #20
    I mean, I'm not hear to completely call you out, but what exactly were you dosed with and how much? ... I am just reluctant to believe that being dosed once would lead to HPPD, unless it was pretty serious. Admittedly, I am no expert and it only seems "fishy" to me that a disorder that has such an extremely low prevalence would become apparent after one time with a psychedelic. Also, to what extent do you have HPPD? How intense are your visual aberrations and how often do they come? Is it accompanied by general anxiety or panic attacks as well?
     
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