Suffering from Kidney Stones: My Story

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SUMMARY

This discussion centers on personal experiences with kidney stones, highlighting the frequency and severity of pain associated with passing them. Participants share various treatment methods, including dietary changes, increased water intake, and medical interventions such as laser treatment and ultrasound. Specific recommendations include reducing protein and calcium intake based on the type of stones, and the importance of hydration. The conversation also touches on the psychological and physical impacts of kidney stones, emphasizing the need for proper medical advice and lifestyle adjustments.

PREREQUISITES
  • Understanding of kidney stone types and their formation mechanisms
  • Knowledge of dietary impacts on kidney health
  • Familiarity with medical treatments for kidney stones, including laser and ultrasound therapies
  • Awareness of pain management options and their side effects
NEXT STEPS
  • Research dietary modifications to prevent kidney stones, focusing on uric acid and calcium stones
  • Learn about the latest advancements in kidney stone treatment technologies, including laser lithotripsy
  • Investigate the role of hydration in kidney stone prevention and optimal water intake recommendations
  • Explore pain management strategies for kidney stone sufferers, including non-opioid alternatives
USEFUL FOR

This discussion is beneficial for individuals suffering from kidney stones, healthcare professionals advising patients on prevention and treatment, and anyone interested in understanding the complexities of kidney health and pain management.

Jimmy Snyder
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Who here suffers from kidney stones? I have been passing them from time to time since I was 30. I started out slowly, but in the past few years it's been two a year. I had a couple removed surgically including one that was an inch in diameter. I mention it because I just passed one earlier today that was half a centimeter. It was the sixth one since October.
 
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A half centimeter?! OW!

Have you made any alterations to your diet to try to prevent them? Avoiding certain types of foods can help avoid some types of stones. If this isn't something you've done or considered, talk to your doctor about that possibility. I don't know if it will work for the type you have (there are different types of stones, as you probably know well if you've been dealing with this for a while and so frequently).
 
jimmysnyder said:
Who here suffers from kidney stones? I have been passing them from time to time since I was 30. I started out slowly, but in the past few years it's been two a year. I had a couple removed surgically including one that was an inch in diameter. I mention it because I just passed one earlier today that was half a centimeter. It was the sixth one since October.
The can disintegrate those with lasers now. I know they're extremely painful to pass.
 
1/2 cm? OUCH! I suffered from them briefly about 15 years ago when I was traveling in my work, eating in restaurants, and just generally not getting proper nutrition. I started avoiding milk, ate more salads and fresh vegetables and fruits and juices and haven't had a problem since. The worst was when I was on a road trip with co-workers from Atlanta to the Gulf Coast of FL and I was crippled with pain. I was the featured presenter at a proposal meeting the next morning and when we got to our hotel, I told my manager that if he wanted any kind of presentation, he'd better go out and buy me a few 6-packs of beer. He did it, and I drank beer until I had to urinate so badly, I was in almost as bad pain from the stretched bladder as from the stone. The pain was pretty intense (though localized, and believe me, I knew where that stone was every mm of the way) and I heaved a big sigh of relief when I heard it "ting" against the toilet. I do not recommend this method of self-treatment for others, but if you are in intense pain and you've got a contract worth maybe $1/4M hanging on a meeting, you might want to consider giving it a try.
 
I would recommend looking into your diet too. Also increasing water intake is known to help too.
 
The first stone I had was made of uric acid. As a result I was told to reduce my protein intake, take alipurinol and drink lots of water. The second stone was made of calcium and I was told to reduce my calcium intake and drink lots of water. My current urologist thought he would get at the root of the problem and had me take a 24 hour urine test. He sent that along with a stone to the FBI somewhere in Washington, but the result was that he doesn't know why I make stones, but I should drink lots of water.

I've had surgery in combination with laser treatment, and a couple of ultrasound treatments. But most of the time they pass without medical attention. I just need pain killer for the ride down. The pain can be quite eye-opening. I use oxycodone, but the medicine makes me foggy, constipated, and nauseous. It beats me how people can take it for recreation.
 
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jimmysnyder said:
The first stone I had was made of uric acid. As a result I was told to reduce my protein intake, take alipurinol and drink lots of water. The second stone was made of calcium and I was told to reduce my calcium intake and drink lots of water. My current urologist thought he would get at the root of the problem and had me take a 24 hour urine test. He sent that along with a stone to the FBI somewhere in Washington, but the result was that he doesn't know why I make stones, but I should drink lots of water.

I've had surgery in combination with laser treatment, and a couple of ultrasound treatments. But most of the time they pass without medical attention. I just need pain killer for the ride down. The pain can be quite eye-opening. I use oxycodone, but the medicine makes me foggy, constipated, and nauseous. It beats me how people can take it for recreation.
Yep! I have had codeine-based cold medications, oxycodone, etc for broken bones, post-surgery pain, and I can not figure out why people think that stuff is fun or pleasurable in the least. I'm always puking my guts out or wishing I could, and just for the record, I'd rather have a broken leg than a session with the dry heaves. :mad:
 
Okay, I'm feeling very light-headed reading this stuff. I stopped drinking soda years ago and have a vegetarian diet. I drink lots of water.

How long after it passes before the pain goes away?
 
Mallignamius said:
Okay, I'm feeling very light-headed reading this stuff. I stopped drinking soda years ago and have a vegetarian diet. I drink lots of water.

How long after it passes before the pain goes away?
Pain is relative. When a stone is gone, you can have a migraine, a broken rib, and lower-back pain, and never notice them.
 
  • #10
turbo-1 said:
Pain is relative. When a stone is gone, you can have a migraine, a broken rib, and lower-back pain, and never notice them.

So if someone beats the crap out of me, all I have to do is pass a stone and I'll feel better? :-p
 
  • #11
Mallignamius said:
So if someone beats the crap out of me, all I have to do is pass a stone and I'll feel better? :-p
You may not feel better, but your pain will be in a new perspective. :biggrin:
 
  • #12
jimmysnyder said:
The first stone I had was made of uric acid. As a result I was told to reduce my protein intake, take alipurinol and drink lots of water. The second stone was made of calcium and I was told to reduce my calcium intake and drink lots of water.

You could stop eating anything and just drink plenty of water and you'll stop getting kidney stones. :biggrin:

I don't understand why people abuse the drugs they do for recreational use either. I've used ketamine to immobilize animals, and as you sit there watching them paralyzed and drooling with their tongue hanging out, you just have to wonder who saw this and thought they'd want to try injecting themself with it.
 
  • #13
I can't imagine what those must feel like. My brother in law is going through one right now which they have measured at just under a millimeter. He has doubled over in pain because of it.

A build up of uric acid is also a sign of the onset of gout. Watch yourself there as well. Stay away from things like red wine if you are still having that problem. I know. That is not fun either.
 
  • #14
FredGarvin said:
My brother in law is going through one right now which they have measured at just under a millimeter. He has doubled over in pain because of it.
Size isn't everything. Stones tend to be crystaline with very jagged edges. The path they must travel is just about 1mm in diameter. So even a stone this small can be pure torture. There are two different pains associated. One is the scraping and scratching on the inside of the path from kidney to bladder (the ureter), and the other is the pressure of blocked waste. Years ago I had a very bad stone that dilated most of my right ureter permanently. As a result, I sometimes pass stones on that side without pain.

If your brother in law's stone doesn't pass on it's own, his doctor may recommend that it be removed. If it has passed a certain distance, it can be yanked out (sorry if that's too much information). If not, ultrasound would probably work.
 
  • #15
I'm sorry, I've never had kidney stones, but I know people who had even my dad.

But there is an old school remedy passed by grandma that even many doctors never heard about. You have to drink a lot for boiled potato skin every day. No kidding. It not only alleviates the pain, but actually dissolves the kidney stones.
This little therapy helped by dad, and other people. Thought something you might try.
 
  • #16
I just passed my 7th stone since Nov. last year. At 3 mm, the stone was smallish for me, yet the pain was considerable. Fortunately, I had my trusty oxycodones. The manufacturer of these pills was ordered to pay a $634 million fine just last Friday for failing to tell people the risk of addiction. As I said before, this drug makes me nauseous, constipated and dull. Apparently, you can heighten these effects by crushing the pills before you take them. Instead of a timed release, you get all the effect at once. I intend to forego this pleasure.
 
  • #17
I just passed my 8th stone this year. This one was about 1 mm and comparatively smooth. There was no pain, and in fact, I wasn't even aware of its existence until it was already mostly passed. My urologist said 8 in one year was the record for his patients. I have until October to beat it.
 
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  • #18
Let's hope you don't have to.
 
  • #19
Isn't there some kind of medication to prevent those from forming?
 
  • #20
Evo said:
Isn't there some kind of medication to prevent those from forming?
This thread is old, message #6 has info on that.
 
  • #21
It's only 3 mo and 2 wks old.

My mom was passing kidney stones this weekend. She does watch her diet and takes medication, but she is still susceptible. She's planning to find a new internist.

I knew she's had them now and then, but she just mentioned she's had them on and off since she was a teenager! I'll have to quiz my brother and sister to see if they've had recurrent kidney stones, but I'm sure I've never had one.

http://kidney.niddk.nih.gov/kudiseases/pubs/stonesadults/index.htm

Hope you feel better jimmy.
 
  • #22
Astronuc said:
Hope you feel better jimmy.
Thanks. I feel fine. This stone didn't hurt at all. In fact, I felt a slight twinge when it was coming down, so subtle that I wasn't sure it was a stone. Only when it came out was I able to think back and realize what I had felt.

I've paid my dues. Years ago I had a nasty stone that got stuck in my right ureter and blocked my flow for a week. The pain was amazing. That dilated the ureter permanently and now even 5 mm stones tumble out on that side relatively painlessly. This stone was puny.

My best to your mom. My mother passed one in the hospital when she had me, and a second one 55 years later. My brother passed one while in the navy and was laid up with it, I forget why. My cousin passed one and was butchered by the urologist. When he passed a second one, it opened up old scar tissue and created a world of trouble for him.
 
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  • #23
I'm the one who does your cat scan when you go to the hospital with one of those. :biggrin: (Sorry about all of your stones! The pain -I'm sure you've heard - is similar to childbirth labor pains.) I'm also in surgery with you watching with real-time xray as the Dr. places the laser tip in your ureter before he/she blasts your stone to smitherines. :biggergrin:
 
  • #24
Tsu said:
I'm the one who does your cat scan when you go to the hospital with one of those.
We're old friends. I've been x-rated and ultraviolated too.

Tsu said:
I'm also in surgery with you watching with real-time xray as the Dr. places the laser tip in your ureter before he/she blasts your stone to smitherines.
I've been through a lot, but not that one. I've had a nephrostomy in which he/she cut through my back into my kidney and then used a laser to cut up a stone and remove it from the quarry piece by piece. I've had something called a basket in my ureter to pull a stone out. And I've had stones blasted with ultrasound.
 
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  • #25
I just passed another kidney stone, the first since September. For the first time in my life, I passed a stone all the way through to the bladder without any sensation whatever. It was .3 cm in diameter and with a very smooth surface. Up till now, my stones have always had a jagged crystaline surface.
 
  • #26
You should start collecting them and put them in a display. You could make the world's smallest museum.
 
  • #27
DaveC426913 said:
You should start collecting them and put them in a display. You could make the world's smallest museum.
I've got about 20 in a small case. I thought I might make a necklace out of them.
 
  • #28
Awesome!
 
  • #29
This is the only thread I've ever read on PF that has made me cringe.
 
  • #30
jimmysnyder said:
I just passed another kidney stone, the first since September. For the first time in my life, I passed a stone all the way through to the bladder without any sensation whatever. It was .3 cm in diameter and with a very smooth surface. Up till now, my stones have always had a jagged crystaline surface.

Jimmysnyder

I notice that your stones appear in the warmer months. I went through that for a number of summers. My Doc finally sent one in for analysis. It was a calcium oxalate stone. They have the very rough surface.

To help prevent oxalate stones there are a few foods and drinks to avoid. Among them are tea and colas.

When I first started having the stones and before one was analysed my doctor told me to drink plenty of fluids, and I did, I drank a lot of iced tea and cola.

Most stones are calcium based yet ironically being low on calcium can cause kidney stones.
 

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